Evaluation of a prototype tool for communicating body perception disturbances in complex regional pain syndrome
Disturbances in body perception are a common feature in several disorders including Complex Regional Pain Syndrome (CRPS). People with CRPS often describe distressing changes in how their limb looks and feels to them. However, it can be hard for some patients to describe and explain their body perceptions to clinicians as they often feel disbelieved and misunderstood.
The aim of this study was to introduce and evaluate a digital media tool, designed especially for patients with body disturbances, to express and communicate how they perceive there body. Thirteen CRPS participants used the application and audio recordings were made of the process.
Patient feedback indicated the need to program modifications that would allow finer and more detailed manipulations of the limbs. Overall, participants reported the positive impact for them, of now being able to see an image of their limb as how they imagined it before and the ability to share this with others. Future improved versions could lead to a useful communication tool for representing changes in body perception in clinical practice. > From: Turton et al., Front Hum Neurosci 7 (2013) 517. Published under the Creative Commons Attribution License.